About Me

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I'm a mom, a wife, a best friend. Sick with CFIDS/ME/CFS and Fibromyalgia since 1975 as a result of a nasty flu while still in grad school, it wasn't until the late '80's that I received a diagnosis. Until that flu I'd never really been ill before. With each year I get progressively worse and add to the bucket load of symptoms I'm living with. I've been blessed with an incredible family and best friend who've stayed with me through my struggles as we continue to find a way out of this monstrous illness and its complications. We've tried seemingly every approach to find my way back to health. Often I think our best weapon in this undesirable and unasked-for adventure has been laughter.
Showing posts with label bursitis. Show all posts
Showing posts with label bursitis. Show all posts

Sunday, April 7, 2013

A Great Topical Gel...




As many of my regular readers know, I've been going through a bit of a rough patch lately. (Falls and the rest are just "rough patches"?  Surely you jest, self!)  I'm getting a bit sick and definitely tired of the CFIDS/CFS/ME and fibromalgia and all the illnesses, conditions and problems that stem from them.

Lately I've had so much hip and buttock pain that it was affecting how I walk and was probably a big factor in some of my falls.  No, somehow I don't think it was responsible for the one where I thought getting out of bed via the foot board was faster and smarter than getting out via the side!  (That colored link will give you a funny -I hope - account.)  

When one of my doctors examined me, he found numerous areas of muscle spasm and even bursitis on both sides.  Local injections with lidocaine (for trigger points in the areas of muscle spasm) and cortisone with lidocaine (for inflammation of the bursa) helped but I still had a fair amount of pain in the hip and buttock area to the point that I was waking up in huge pain.  Usually, if I can finally fall asleep, pain doesn't wake me up, so you can imagine that I was NOT a happy camper - all week.  (And you know what they say, "If mama ain't happy..."  Yeah!  Cheerful place around here, let me tell you!)

I was already taking a maximum dose of Celebrex, which is an extremely safe anti-inflammatory medication, compared to the other anti-imflammatories out there.  I'm getting ahead of myself here, but I've long wanted to point out that Celebrex is much safer on the stomach than the other anti-inflammatories and is well tolerated by most, EVEN the stuff that's over the counter like Advil, Aleve, MotrinIB.   HOWEVER, the one draw-back is that you can't take Celebrex if you are allergic to sulfa-drugs.  (Thank heavens, a problem I DON'T have and it works well for me! Yipee!)  

Another point I've wanted to make is that when you read the side-effects of this gel, as with many other medications, the warning is overblown because it has to be.  That is, in the case of the gel, the same warning goes as for the oral meds, which we'll cover later.  However, you'll see why this is even a bit "deceiving" and certainly alarming.  But then you guys know how I feel about the FDA, etc.  Lyrica and Lunesta on the market despite SUICIDAL ideation and actions, but Vioxx taken off?  Nuts! 

But back on track... I'm already taking a narcotic medication - as needed for pain - along with a few other medications in my arsenal that should work but aren't.  So we got to the point where I've gone for the numerous injections in the hip and buttock area.  It's always worked before but this time we were really having trouble with the pain.  It was helping but not enough.  Mind you, I don't expect to be pain-free, but I can't live at a 9.5 and let the shots or meds get me to a 9.  It's hardly worth the "poisoning" of my body.  So, unfortunately, I was still having significant discomfort.  What's a girl to do?  (That last line seems to be a thread in my posts lately.)

Fortunately, there is a topical anti-inflammatory medication which has been approved by the FDA for osteoarthritis.  Any licensed physician can prescribe a medication "off-label," which as many of you know, means that if a medicine is approved for an indication such as arthritis, the doctor can legally prescribe it for other conditions such as bursitis, tendinitis, etc.  That's what's  happened in my case.  My doctor told me that the topical preparation, Voltaren Gel, might help me since it's effective in blocking the inflammation found in arthritic joints.  I applied Voltaren Gel liberally to both hips and buttock area (lots of real estate going on there!) and noticed a significant improvement in the pain and stiffness.  

So, what is this stuff anyway?

Voltaren is the brand name of diclofenac, an extremely potent non-steroidal anti-inflammatory medication (NSAID). Taken by mouth, it can relieve the pain, swelling and stiffness associated with arthritis.  However, it has major draw-backs. It can cause bleeding stomach ulcers, kidney failure, and liver damage when taken orally.  

On the other hand, the gel form is far safer than the pill form since only a tiny amount of the medication gets into the general circulation.  The bulk of the medication stays in the area where you put it and penetrates the skin to get to the area of inflammation. Therefore, as mentioned above, Voltaren Gel is far safer than any of other anti-inflammatory medications even those that are over the counter, such as Advil, Aleve, Motrin IB, etc.  Furthermore, Voltaren Gel has been around for well over over five years, so side effects have been seen and reported, analyzed, with no cases of stomach, kidney, liver toxicity.

Every year in this country approximately 16,500 people die of gastrointestinal complications due to ORAL anti-inflammatory medications.  I can't stress this strongly enough.  Taken as prescribed, ORAL anti-inflammatory medication can kill you or harm you, especially if you are susceptible to side-effects due to advanced age, have a prior history of ulcer disease, and/or weakened system due to other diseases.  

On the other hand, as my pain specialist explained, the topical gel form of Voltaren is very safe.  The only real problem with using this product is that if you are allergic to aspirin you MUST NOT use this product as its use could trigger a severe allergic reaction.   Otherwise, this preparation is very safe and potentially very effective as was my experience yesterday.  I'll let you know how it goes, but for the moment, I've got a bit of relief!  That's great in my book.

As always, hoping everyone is feeling their best, only better!  Ciao and paka!


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Sunday, February 17, 2013

"Woeful Me" ;)

Woeful daughter, "But DAAAAD!"
Today's post is not an easy one to do because for the last couple of weeks I've been feeling under the weather a bit more than usual.  Several times I told hubs that I wouldn't be able to write a post tonight but in the end my guilt got the best of me!  My life has also gotten a bit busier than is good for me - quite the opposite of what I should be doing at this stage, which is getting a lot of rest.  However, life happens and there's not much you can do, no matter how much you try.  Right?  Right!  So onward! 


  • The week before last, I did end up going to see my endocrinologist since I felt it would be too rude to turn down an appointment that was carved out for me after the cancellation.  It was a very good, though intensive, visit.  First, it took me my usual 3 hours to get ready; secondly, my sleep was so messed up that I was up at 3AM for a 3PM visit.  The drive (by hubs, not me!) to see him is a bit long and the visit took over an hour.  Normally I see him at least once a year to make sure that my Human Growth Hormone (HGH) levels are where they should be and that the dosage is correct.  This time we had so very much more to go over, including the after-effects of my gall bladder surgery (hormones involved in this aspect of my health as well) and my adjustment (or "non-adjustment") to the hypothyroidism.  Much was accomplished and many more blood tests ordered.  In other words, he doesn't like where I stand some 4 months after the diagnosis of the thyroid problem.
  • Then, as luck would have it, two days later we had a meeting about the progress of the redecorating, remodeling, etc., and how it was coming along.  Let's just say that it was off-the-chart stress.  Fini.
  • On top of all that, even hubs started getting worried about the disappearance of my jewelry and we've been hunting it down every chance we have.  I thought the post on the "blue men" would dissipate any nerves regarding this issue.  That is, I thought I'd be able to put things into perspective about it all and let the jewelry appear when it would, but no such luck.  The more we hunted, the more I "yelled" at hubby and the more nerves were frayed. (Ahem.) This morning, after almost two weeks of jollies on the part of the blue men the jewelry reappeared in our house.  Hubs, the stalwart one, was almost in tears because I had been so upset.  (As Marlo Thomas, Rosie Grier and the kids would sing, "it's alright to cry!"
  • Which brings me to the last bit.  I've been feeling so ill from all these events (and MORE!).  My health simply keeps getting worse and worse.  I find myself falling asleep at the oddest times for many hours, then not being able to fall asleep when I've had pain out the wazoo.  And it's been the craziest things, too, which have been bothering me!  For example, last night I suddenly developed bursitis in a cheek (not one of those on my face!) and it took three well-aimed shots to get that under control so that I could move.  Suddenly, I had not only one leg I couldn't count on - the one with the neuropathy - but a second one which was collapsing on me, the one with bursitis.


Would it be too trite to say that in the last couple of weeks it feels like the old song, "if it weren't for bad luck, I'd have no luck at all..."?   

One good thing, however: despite how I felt, I only cried once.  It could have been a river but at least I was able to control that part of my life.

As always, hoping that everyone's feeling their best, only better.  Remember: don't be like me: it really IS alright to cry!  Ciao and paka!