About Me

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I'm a mom, a wife, a best friend. Sick with CFIDS/ME/CFS and Fibromyalgia since 1975 as a result of a nasty flu while still in grad school, it wasn't until the late '80's that I received a diagnosis. Until that flu I'd never really been ill before. With each year I get progressively worse and add to the bucket load of symptoms I'm living with. I've been blessed with an incredible family and best friend who've stayed with me through my struggles as we continue to find a way out of this monstrous illness and its complications. We've tried seemingly every approach to find my way back to health. Often I think our best weapon in this undesirable and unasked-for adventure has been laughter.
Showing posts with label debates. Show all posts
Showing posts with label debates. Show all posts

Friday, September 21, 2012

Friday Tidbits: Fibro-Brain


And it's Friday yet again!   How, I wonder, can the time move so quickly and yet so slowly, both at the same time.  It's been a heck of a week!

Since this is a bit of a potpourri, here are some of my (very) random thoughts and experiences.


  • The hypothyroidism is about to send me over the edge.  Honestly, I thought I was finally getting a bit of control over my life, despite the fact that I knew that there is and has been something majorly wrong going on with me.  Good grief, I'm in bed almost 24/7 and had more or less resigned myself to this stage at this time, despite the increased pain and all the other symptoms that are driving me batty.  But the awful thought: I know that the thyroid problem (and the symptoms associated with it) are just the tip of the (new) iceberg.  But, as usual, in "Irene-land," I messed things up, just to make life a little more interesting.
I was to have blood testing done again last Monday to see what my thyroid level was, along with a few other goodies. Even at my best, I have trouble remembering to take my thyroid med.  I'd finally decided to take the new med in the AM, afraid it may interfere with the bane of my existence, sleep, or the lack thereof.

Well, I'm the first to admit that I am really awful about taking meds.  Fibro-brain at it's best.  Sunday afternoon I remembered I'd not taken it and since I was in the middle of something - probably looking woefully at the pores on my face? - I asked hubby to get me the med.  I was actually shaking so much that hubby insisted that he put it in my mouth - I'd been dropping meds right and left all week.  Trusting soul that I am not, I felt with my tongue that there was only one pill and chastised hubby for his mistake.   A suddenly rather pale-looking hubby asked, "what do you mean?" - clearly realizing what had happened.

When I'd started the thyroid med, we soon doubled the dosage.  For some reason (what? I have NO idea) I continued to take two pills after the prescription was refilled with the new dosage ... so I'd been taking double the amount of medication I should have.   Fibro-brain at its finest!!! :)  Oy vay!




  • I'm getting a bit annoyed with the whole ME vs. CFS fight and which is worse and who has it worse and all the nonsense involved.  It is EVERYWHERE!!!!

It's not rocket science, people. If it looks like a duck and acts like a duck, it's a d*mn duck!   The term "Chronic Fatigue Syndrome" (CFS) is insulting.  I absolutely DESPISE it.  Why not just go back to calling it "The Yuppie Flu" and get it all over with!!!!   "Myalgic Encephalomyelitis" (ME) is better but not accurate either, plus it's hard to spell, a definite consideration with those who have this illness!   I, personally, prefer "Chronic Fatigue Immune Dysfunction Syndrome" (CFIDS) and it's the term I use in life, but that's not accurate either.   As long as you don't call it CFS, however, I don't really give a darn which name is used, CFIDS or ME.   But give me a break: stop the fighting and arguing!  It is all the same animal, just different politicians!   Full stop!  Period!





  • On a lighter note - and don't even bother trying to figure out how I got here - after all, everyone in my family says they would never want to live in MY brain, even for a second.   But if you get a bad haircut, turn it around: it's Murphy's Law.  If you get an awful haircut and color, highlights, etc., it means that something wonderful will happen.  I got my worst haircut ever, as did hubby, for our son's wedding in Malaysia.   Just saying.... think about it - or not.

Finally, I hope all have a great weekend, and I hope everyone is doing their best, only better.  Ciao and paka!