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| Four-month-old Irene wants to have a discussion about saying "no"! |
I thought I'd start a series dealing with fibromyalgia tips, very short ones. OK, I know. You've heard "short" from me exactly HOW many times? However, if I can pull this off, it would be no more than 3 tips with each fibro tip-dedicated post.
These would be "things" that I've had experience with personally with my severe fibromyalgia and/or "things" my rheumatologist and GP have found to be of help with their own fibromyalgia patient, be it accompanied or caused by CFIDS/ME/CFS, lupus, rheumatoid arthritis or the scores of other problems that can cause fibro. Some tips will seem obvious whereas some might be a complete surprise - or so I hope. Now I just need to come up with a good title for the "series," in addition to those ideas. (Irene bangs head against headboard today!)
The usual caveat comes in as it does for most blogs dealing with fibro, and indeed any illness. That is, I'm most certainly not a doctor, though I AM a veteran of the fibro war from well before fibromyalgia was even described. Furthermore, we have all found ourselves in this rotten situation for all too many different reasons and we're all made differently, so what may work beautifully for one person, may be a complete non-starter or non-issue for another. So with those thoughts in mind, I begin this new "feature":
1. HGH (Human Growth Hormone):
More research and positive results (the "bad news" kind) in regards to the low level of adult growth hormone in fibromyalgia are seen every day and in staggering/surprising numbers. Two clues to HGH insufficiency are a "big" belly and slight scratches or tiny kitchen burns which would normally not show up at all, suddenly not healing. If this is happening to you and no matter what you do to try to remedy the situation, nothing works, and you suspect a problem with your HGH levels, please discuss this with your doctor. Keep in mind that this is one area which most doctors are not well versed in: it's pretty specific or specialized knowledge, so you may need a bit of documentation/homework to present to your doctor (with as much humility as possible) if you decide this area needs investigation.
2. Disability stress:
If you're getting stressed out because of bureaucratic run-arounds and nothing seems to be helping in resolving your disability paperwork to come through, consider notifying your local representative. I realize that this may be more effective in areas not heavily populated - getting to your local representative in places such as Chicago or Los Angeles gives you some mighty stiff competition from so many varied areas of concern. But really, you'd be surprised at how quickly some things can be processed if you go this route if you've been banging your head against the proverbial wall, with no results, paperwork always stuck in some limbo. Better yet, a one-on-one talk with your state congressman is even more effective than a letter or phone call if you're able to be "out and about." I'd also venture to say that getting to know your local representative in the first place is not a bad idea. You just never know when that personal connection might come in handy.
3. Learning to say NO!
Just because you have ALL this time on your hands - which is how the world perceives those with "invisible" illnesses - don't get bullied into doing tons of favors for other people. Listen up, please: tell those who are insensitive enough to ask for health-draining favors that your doctor forbids it (whatever the "favor" is) and put the blame on him. And this would, most likely, not be even close to a "white lie." (I have a real bugaboo about any sorts of lies.) Your doctor, if he's worth his salt, most likely HAS spoken to you about your limitations, talked about "health credits," pacing yourself, avoiding needless stress, the need for rest and so forth. So don't be embarrassed to evoke doctor's orders when in a bind! I know that it's hard to go this route because I rarely did so myself - and look where it got me! Yet WHY is it that we're hesitant about being honest? Furthermore, that's what you're paying your doctor for: to be your health advocate. Take advantage of what you're "getting," ie, great advice!
What do you think about these tips or this fibro tips concept? Let me know ... if the comments box works for you, that is!
Happy Thanksgiving to those celebrating my favorite holiday. As always, I hope that everyone is feeling their best, only so very much better! Ciao and paka!
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