About Me

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I'm a mom, a wife, a best friend. Sick with CFIDS/ME/CFS and Fibromyalgia since 1975 as a result of a nasty flu while still in grad school, it wasn't until the late '80's that I received a diagnosis. Until that flu I'd never really been ill before. With each year I get progressively worse and add to the bucket load of symptoms I'm living with. I've been blessed with an incredible family and best friend who've stayed with me through my struggles as we continue to find a way out of this monstrous illness and its complications. We've tried seemingly every approach to find my way back to health. Often I think our best weapon in this undesirable and unasked-for adventure has been laughter.
Showing posts with label dietary restrictions. Show all posts
Showing posts with label dietary restrictions. Show all posts

Friday, October 5, 2012

Friday Tidbits: You Are What You Eat!

My personal food bible, thanks to my BFF!

Well, here we are again, with TGIF, or as I think of it: TGINFOMO, "Thank God it's not fibro on my own!"  It would be TGINFAMEOMO but adding the "And ME" to the equation makes it a bit difficult to pronounce, I think, no? 

At any rate, that means it's also "Friday's Tidbits," the time of the week when I try to come up with a few tips or thoughts that have been circling in that brain of mine - you might remember that as the place no one in my family ever wants to venture into.  The saving grace is that the "Tidbits" are just that: small, short posts!  (Yeeha! I hear you!) 

As most of you know by now, I've been going on about my hypothyroidism almost ad nauseam, and to subject you to a tiny bit more of what's going on, I thought that since more results from the blood work have trickled in, I'd make a few observations that would perhaps work for just about everyone out there.  (Yes, my generosity of spirit amazes even me at times! ;))

I've been "celebrating" the hypothyroidism since I got the news by eating everything and anything within sight of me even though, paradoxically, everything makes me nauseated.  But really, when has nausea actually stopped a really good woman in "mourning" from eating?  Worse yet, everything tastes like cardboard - and 16th century cardboard at that. Yum!  Nothing like nice stale 16th century cardboard to tickle those taste buds! 

However, since Monday, I've put the brakes on my "celebratory feasts" and decided, "Irene! Ya gotta stop this food nonsense and try to get back to eating properly, d*mn it!"  After all, my year of getting myself to look human is slowly coming to an end (i.e., December 31 is, unfortunately, not THAT far away), I'm hitting a landmark birthday at the end of the month (I'd ignore that little mention if I were you: it's much safer that way.  It will NOT be a very pleasant day in this house, I can tell you that already!) and there have been way too many curve balls thrown at me this year to have put me anywhere near successful in "looking human" once again.  

But after succeeding on Monday with "eating right" I was shocked to see that I was actually able to accomplish one day of doing well!  (Irene style.  Don't forget my mantra: everyone has their own way; you just need to figure out what your own body does best with.)  I was shocked to see that Tuesday went off very well, and then Wednesday and Thursday also!  Oh my heavens!  What was happening to me?  I've not been able to motivate myself to eat "properly" since I got back from my Malaysian adventure.  What's changed?

Well, Thursday evening I got some more blood results back and saw, much to my surprise, that my glucose level is normal!  No wonder I was suddenly able to apply willpower and have it actually work.  No willpower in the world was working before because my sugar levels were all over the place.  (Even my old cinnamon trick wasn't helping me!)  A few other results came in as well, that are kind of funny too.  Not funny as in "ha! ha!," but as in "hey, that's interesting!" In the spirit of brevity, I'm going to make a few observations and tips, combining them for all to make life, as well as this post, (hopefully) more interesting.

  • Did you know that it only takes about three days of determined effort to get rid of old bad eating habits?  Yep.  Once you make up your mind, that is, all you need to do is get through three days of getting rid of awful eating habits and it becomes a thing of the past.  Now that doesn't mean you won't crave "bad" things but the longer you are away from "bad" food, the easier it is to eat "right."  My personal downfall is sugar - and, of course, carbs in the form of potatoes and breads.  But I've not had any of those amazingly delicious foods in three days and though I know that the upcoming week can still be dangerous territory, once I get past the three-day mark, I am well on my way!  For those really interested in what foods I find most helpful and healthy, I highly recommend Jonny Bowden's 150 Healthiest Foods on Earth, where every type of nutrient necessary for optimal health is addressed with each "healthy" food mentioned.  (See below picture of what I mean.)  I just find the foods that agree with me best and go to it.  My BFF gave me a copy of this book a few years ago and out of all the healthful-eating books I have in my library, this is THE best, with one exception, which I'll get to one of these days.  I highly recommend this Jonny Bowden for everyone.  And to think I started eating from this book in order to take off 40 lbs!  I actually took 60-75 lbs off the safe and right way and felt much healthier in the long run.  (I've gained with the hypothyroidism so that's why you're getting a range.  But it WAS 75 lbs at one point for a few years.)  So, Jonny, here I come!  I've missed you, baby!
  • The lab work has  also shown that I'm still clinically dehydrated.  All that drinking of water and running back and forth like an Olympian between bath and bed doesn't seem to be working!  However, I've been running fevers galore, so that's certainly a factor in the whole dehydration process.  I'm going to try to take more baths and soak for a bit in order to attack my skin from the outside as well as from the inside.  Wish me luck!  And I so hope the skin elasticity is not all gone!
  • The good news is that I'm again spot on with my Vitamin D levels.  This number had gone down for the first time ever.  Now most can blame it on my not getting out into the sun (and how my mom would chide me - understatement! - for saying this) but the sun and light really are my enemies.  I was shocked to see that despite living as much as I possibly can in a Bat Cave, my Vitamin D levels have always been in the normal range and again, can only find an explanation for this in that I'm getting Vitamin D from my food and/or that my fair Slavic skin is an evolutionary process which doesn't require as much Vitamin D as a darker person would need, like my very dark Slavic mom.  But really, who knows?  These are just some of the things I think about.  And as I've often stated: I LOVE to think, much to my family's dismay!
In the end, I'd like to emphasize that what you eat is often what you are, such a cliché, I know!  However, I like to open a fridge and look at it as a medicine cabinet and skip the vitamin supplements if and when I can.  No, I'm definitely not enamored of salmon - nor any fish of any type - but I'll eat it at least once a week in order to get those important omega-3 fatty acids (while worrying about mercury and other toxicity, of course!).  I learned this food approach (the hard way) from my mom and then loved hearing this from Naomi Judd when she had her Hepatitis C crisis and was on TV with Dr. Andrew Weil, talking about how much better it is to get your vitamins and nutrients in food form.

Furthermore, just in the last few weeks there was a report questioning how helpful omega-3 fatty acids in the form of supplements actually are and the suggestion was that we should try to get those nutrients through food as much as possible (uh, duh???).  My take?   As of yet, we have no idea why actual food works better than supplementation: there may very well be a means that no one's discovered yet as to why "supplements" just don't work as well as the real thing. Just off the top of my head: perhaps the sugars or fiber in the food help the delivery system, but who knows? Yes, I do try to take vitamins and supplements, especially for the parts of me that are "broken," but really, I've found that getting those all-important nutrients through food works best in the long run, if at all possible.  

At any rate, I wish everyone a wonderful weekend with some great company and hope that all feel their very best, only better!  Ciao and paka!

An idea of what the individual sections on each food within its category looks like in this particular Bowden book.

Sunday, May 20, 2012

CFIDS sensitive skin: Some of us need to learn the hard way...

My mom is proof positive that eating healthy and exercise really helps you look great even when you're 70.  Here in Kiev in '93.

At times I marvel at my colossal stupidity.  I mean, I've had CFIDS/ME/fibromyalgia and all of the health issues that have resulted from this core illness for 37 years.  And yet, somehow, I'm still in denial and do incredibly dumb things.  


I KNOW I have sensitive skin.  I've even written in this very blog about some of the problems I've had because of this.  I take an anti-histamine every night in order to keep hives at bay.  For Pete's sake!  You'd think by now I'd be a bit more careful about what I put on my skin and what I eat and/or drink.  But I'm constantly doing stupid things. Well, I guess I needed to go too far in order to start back to where I would get some real help.


Yesterday, Saturday afternoon, was quiet around here.  Hubby was exhausted and was taking a long nap.  I'd gone to the dentist on Thursday, a hugely needed event, and had my teeth cleaned - YAY!  The plaque was driving me absolutely bonkers and I had two year's worth because of the whole thing going on with my daughter.  Now we're, of course, catching up with everything.  


BTW: I had some really good news that could be taken as a tip perhaps.  For the first time in my life, I had no cavities.  My dentist (of almost 30 years) was quite surprised and said so: with my dry mouth, it's always a given that there'll be major problems, at the very least, cavities.  Given how long it'd been since my teeth have had any professional attention whatsoever, this was nearly a miraculous happening.  But once the conversation turned to bad backs, I thought to mention that I was able to brush my teeth more frequently because we had remodeled our attic bathroom (the one we've been living in for a year because the "master" bedroom and bath are being remodeled - SCREAM!) and that we'd put in a tall vanity with the sink.  Rather than those low vanities where you have to bend down so far when you wash your face and do your morning or nightly routine, our new vanities are now the height of the ones in a normal kitchen.  What a difference.  Now I have much less back pain so my brain doesn't rebel as much when I try to go brush my teeth.


But on Saturday, I came down with hives and couldn't figure out what the heck was happening. 

We remembered that on Friday I was feeling so cruddy that I called hubby at work and said that I absolutely needed a hero, loaded down with tons of processed meat: salami and ham, especially.  I needed the salt big time.  And I told  him to add a pizza to the whole bit.  If I was going to be "bad" and eat those things that hurt my body (the carbs and combining carbs with proteins/fats, plus processed food in general), I was going to at least enjoy it.


On Saturday, having already messed up my good eating habits, and feeling worse, I added cookies and milk to the whole eating disaster, and asked hubby to defrost some of my piroshki while he was at it.  Piroshki are these wonderful baked rolls with a ground beef filling that also has my beloved dill in it, etc.  (Everything Russian has dill, or sour cream, or better yet, both!)


So hubby and I tried to figure out what in the world had caused these baby hives that were breaking out all over, section by section, like a general sending troops out to occupy new territory a bit at a time.

I remembered that after the dentist we had stopped at the pharmacy nearby.  I had needed some retail therapy. I've never been a believer in "retail therapy," but now that I am getting out even more rarely than before, I just needed to hit a store and look at those items I see on the Internet.  Wow.  The shampoos and products I see on "Project Runway" or even on the occasional commercials I don't manage to skip through - I never thought I'd get excited seeing them in real life!  What has my life come to?


So, as hubby had laid snoring next to me, I'd picked up the bag of what I'd bought two days earlier.  Yes, by the time I got home I was in no shape to even look at what I'd bought, much less appreciate it.  Friday, the day after the dentist's appointment I was in more pain than I've had in a long time, weaker than I've been in a long time.  


Post-exertional malaise anyone?  


As I wondered about the adventures at the dentist, I  remembered a nurse who was a patient at the holistic clinic I went to weekly for an entire year, back in 1997, something I'll get into at some point, I promise.  I'd see Betty there every once in a while when I'd get my weekly chelation or a "nutritional IV," a variation of a "Meyer's cocktail" (one of many therapies I underwent in that clinic each week) and wondered why she was there.  She didn't appear to be sick.  Yes, she was "elderly," but that certainly didn't "mesh" with what we had going on at the clinic.


I got to know Betty and she was fascinating.  She loved talking to me because she'd gone to nursing school in my home town - back in the early 1940's - and would love to hear if certain stores were still in business, what had happened to this place and that.  I loved listening to her because she'd been a nurse during WWll and I was absolutely stunned by the one time she did open up about what she'd seen when she worked at Dachau for just a few days or a week, after the war once the concentration camp was liberated.    


So, Betty was truly one of a kind.  I wondered, why was she there, hooked up to an IV?


Well, Betty was also very spry for her age, very energetic, looked at least 10-15 years younger than her real age. But she had always taken good care of her health, even when we Americans were not doing so.  Like my mom, she exercised every morning as soon as she woke up and took walks, even when people would stop and ask if she (or my mom) needed a ride.  No one walked when I was growing up.


And Betty felt that going to the dentist was an assault on the body, thus the "nutritional."  Wow.  I was really impressed. 


You see, though she never practiced in the US, my mom became a dentist after the war.  When she was in her DP camp (Displaced Persons camp) near Munich, the DP's, along with various international organizations and the Marshall Plan, started schools and my mom was able to continue the education that was stopped because of WWll when Ukraine was invaded by the Germans.  In her camp, where she lived for five years, she was able to get a wonderful education, including dental school.


Mom was always taught that dental work IS an assault on the body and that they should recommend that patients take it easy after any dental work.  In fact, they were also taught that during the woman's "time of the month," she shouldn't have any dental work done, it was just a bit too much.  


I know this sounds very old-fashioned and I know that it even sounds anti-feminist.  But the times I had dental work done on me at "that time of the month," when my mom wasn't aware of the "scheduling," I always came down with a cold or was generally run down.  One day, I famously barfed and passed out in calculus class, two days after the procedure.  Talk about embarrassment?!  And my mom was furious with me when she had to leave work and drive me home, asking me, hadn't she taught me better?


So, yesterday, visions of Betty bounced in my head as I tried to talk myself out of this awfulness I was going through.  No meds were helping, no mind games were doing any good.  And I tried not to think about the couple of dental projects I was scheduled for in the next couple of months.


Lying there, bored to death, I'd opened up the bags from the pharmacy I'd dumped by my bed and started looking at the "treasures" I'd brought home.  "Treasures," I might add, that hubby had warned me about, unfortunately.


I'd already tried the cotton pads.  Hubby had asked me if I REALLY wanted to buy them, since I usually curse the ones he gets me at the drugstore and I try to go with the Shu Uemura (which are almost impossible to find) or my second choice, Sephora's.  Annoying hubby was so right: when I took my makeup off that evening, it took seven of the new cotton pads to wash off the makeup with the micellar water I used, whereas you only need two pads from Sephora, and to add insult to injury, my face reacted to the very rough cotton, becoming very red and irritated. Those pads are definitely going back to the drugstore.


Also, lying in bed, I'd picked up a certain "correcting powder" that I'd seen someone on the Internet recommend, someone I like to follow on YouTube and whose recommendations which I've tried I've had great luck with.  I brushed a bit on my hand, the one with the huge scar, and wanted to see if I could see any change.  The powder in the compact was not bound together very well and it flew everywhere as I picked it up onto the brush.  As I tried to tap off off the excess, it was still flying all over, as well as when I brushed it onto my hand.  Nope, no difference.  I put it further up my arm, past my watch.  No difference, with powder still flying all over, cough, cough.  I was surprised hubby was still snoring away and that the flying powder hadn't woken him.


About 15 minutes later the area I'd bushed with the correcting powder on my hand started burning.  Stupid me, I tried to rub it off.  Of course that's just rubbing whatever was irritating my hand further into the skin.  Finally, I realized I needed to wash it off.


Finally! I fell asleep before I could do more (inadvertent) damage to myself.  But then I kept waking up, scratching. Each time I woke up scratching in yet another place but made myself fall back asleep - I really needed sleep, the bane of my existence.  After about the fifth time I realized that the scratching wasn't going to get any better, only worse.  My neck was affected, the shin of my left leg, and on and on and on it went.  


Hubby gave me Tylenol PM because it has Benadryl in it.  I knew that wasn't going to cut it so I reminded him of my nightly anti-histamine.  I took that and after about an hour the hives started to die down. We started reviewing everything I'd done, trying to figure out what could have caused the hives.  How in the world did whatever it was get into my system - what had caused the hives?


Later last night, very late, I happened upon a blog and the woman was someone I think someone here wrote about earlier, when talking about a muscle biopsy.  I read a few posts, enjoying the blog tremendously and even left a (long, of course!) comment.  I was convinced it was the milk I'd had that caused the hives.


But today, in the light of day, having analyzed everything, I am convinced it is the cheap pharmacy makeup.  My daughter stopped by as I got ready to take a long bath with a soothing milk product (ironically), and also gave me "a look" and said she was sure it was the makeup.  After all, I do get lactose intolerant if I've gone a long time without any milk, but it's never made me break out in hives.  Cheap makeup?  Yes, it's given me hives and other trouble in the past.


So, a little mystery solved.  And I feel stupid.  I already know I cannot handle silicone, or at least a product that has a lot of silicone in it, especially if it's in a cheap product.  And I also know that I can't handle a lot of the ingredients in the less expensive makeup and skincare products.  When I buy La Mer or Chanel, there is a reason. 


And yet, I worry so much about appearing like a spoiled diva that I end up sabotaging myself.  It's about time that I take a reality check and realize that the there is a reason I come back to the higher-end luxury products and they aren't because I'm trying to be a spoiled brat. 


But Betty and the IV nutritionals...why did I bring all of that up?  


Last night hubby and I realized that things have really gone too far.  I'm still recovering from everything my body went through with all those weeks and weeks of staying by my daughter's bedside at the "major medical center." I've not recovered well from the whole hospitalization and surgery thing I had going on back in November/December. I've not recovered from our visit to get my hair done, which was over a month ago.  I've not recovered from the GP's "normal" visit, nor the subsequent visit when I had to get my toe lanced because of the infection that wouldn't go away.  And now my body is trying to recover from the dentist and my stupid application of a cosmetic full of ingredients that don't agree with it.


We had to bring in the big guns.  It was time.


My GP and I have a great relationship.  I've been going to him for at least fifteen years and he remembers how well I did with all the treatments I underwent at the holistic clinic.  His philosophy and I quote: "I don't care if they put cow sh*t on your head.  Whatever they're doing, it's working.  Keep it up." 


One of the things that helped so much were the nutritional IV's.  In fact, there have been athletes in the past who have had CFIDS/ME and been able to play but do nothing else between games.  They've had their doctors on the sidelines pumping simple saline solution during the games.  But when the games were not in play, these athletes have gotten versions of "Myer's Cocktails."  Basically, your physician figures out which vitamins and minerals you are deficient in and puts those nutrients into a saline solution and it usually takes about two hours for the IV to get through your system.


So, last night, we resolved that my "eating right" was no longer enough.  I'd tried for a few months, I'd incorporated vitamins into my routine and I was doing much better on the migraine front but the rest of me...well, not so good. In fact, in some ways, I was doing worse, having become extremely accident-prone, a completely new development.


So, I had a health professional administer a nutritional last night.  We sat in my bedroom and watched a movie ("One For the Money" with Katherine Heigl and Sherri Shephard from Janet Evanovich's series, cute!!!) and by the end of the movie the IV was finished.


Today, I'm still feeling pretty bad, but I can tell that the nutritional has helped and am going to try to get a couple of nutritionals a week for a while, though I have no idea how long that will be. 


However long it is, it is well worth it and I highly recommend investigating this approach if you are in a state where nothing is helping.  


And I recommend that you stay away from some of the cheaper cosmetics too.  


Boy, this illness sucks and costs a bloody fortune! 


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Friday, April 13, 2012

But Wasn't Easter LAST Week?




Painting by Boris Kustodiev, with Kulich and Cheese Paskha in the background.

I finally understand why in Victorian and Regency England, which I’ve read about as far back as I can remember, women of means had a day each week which was designating as their "visiting" day.  A "lady" might declare by some reason which day (or days) it was that she would receive visitors, with reasons and rules so complicated that my fibro brain cannot recall all the aspects as to how this was decided, and I do not have the energy to do much research about it, simply to make a few points in this post.  (Sorry! Fibro brain and weary CFIDS body, unfortunately, rule.)  

But I always found the concept of a visiting day and the etiquette involved fascinating because it was all so multi-faceted. The butler, of course, was there to accept a visitor's card on a special tray if the lady of the house wasn’t "in," even if she was, actually, at home. There was the placement of the card on a special tray and I always loved all the wonderful crazy-sounding details as to how the card would be placed, if there was a fold put on the card, and if so, in which corner it was made.  Like everything else in Victorian England, all had a symbolic meaning, from the flowers that whoever gave to whomever, to the "simple" art of calling on one another.

Well, today I suddenly, finally, really and truly understand the beauty of the visiting days and calling cards.  I’ve been feeling extremely "awful" (what other word describes so much?) this past week, the second one after my run up to get my hair, etc., done.  I’ve had my traditional Russian Easter recipes lined up and a list of groceries made up for hubby to buy from our local Kroger’s, as well as from the little Italian store that I suddenly realized might actually carry the farmer’s cheese for the "paskha" I would be making.  (I wouldn’t actually know because I’ve never been there and I haven’t been to a Kroger’s in at least two years, mind you.)  Hubby had found the missing Paskha mold a couple of weeks ago, which, I tried to convince myself, was a promise that somehow I would indeed be able to make the traditional Russian Orthodox Easter foods this year, that my adrenaline would, indeed, finally kick in. 

And it’s been especially significant that I do the traditional cooking and baking this year, as a symbol, if for not other reason. Last year, the first year I skipped this ritual in the 37 years I've been married, we were at the "major medical center" with my daughter just as my hubby was at our local hospital for a relatively minor operation - an emergency surgery that he was taken into just as my middle child and I were trying to catch up with the ambulance taking our daughter up to the medical center hours away from us with yet another death crisis.  Given that it was hubby’s first time in a hospital ever, that he was so worn out from running to and from hospitals and work, that his condition had become so "advanced" that they kept him in the hospital for several days, I was feeling really guilty that hubby was in the OR while my middle child and I tried to figure out what was going on in another city with my daughter. There is no end to reasons for feeling guilty if you’re a mom - it simply comes with the territory. I had to deal with some very ignorant doctors – monster arguments which even frustrated our principle doctor, her surgeon - who simply would not listen, teams of docs coming in and out….  Let’s just say, it was an awful time which, hopefully, someday we’ll all be able to laugh about.  I remember writing to a friend that no, this year I’d not made the cheese paskha nor kulichi and that if someone had spoon fed me those foods just after Easter Sunday as we had finally arrived home, I would not have been able to hold the food in my mouth and swallow, I was that overwhelmed, worried, depleted and exhausted.

But last night I had a melt-down.  I no longer remember what it was about, nor does it really matter. A lot of (relatively) little things went wrong and by the end of the day I couldn’t take it and just lashed out.  Hubby and I both realized that the reason for the disagreement had no relevance to the argument.  We both realized that it was because I was still upset that the appointment with my new sleep doctor had to be cancelled last week and that I was having a particularly harder time recovering from my "beauty day" than either of us had anticipated.  But the final blow: we both realized that with each day that passed this past week and me still not able to take a shower nor wash my hair, my sleep cycle being no sleep cycle at all but catch what catch can, the chances were getting slimmer and slimmer that I’d be able to do any Easter baking and cooking.

And just now, the blow that really hurt, though I’ve not decided exactly how and why.  Hubby really hated to ask me this since he knew how this would hit me.

But first, let’s go back a few years.  Ok, more than a few years, back to Easter 1988 or 1989, thereabouts.

In the Russian Orthodox Church, to put it simply, we do nothing the easy way.  We don’t even have pews in the church, and our Sunday liturgy goes on for a good two hours.  Depending on how slowly the priest speaks or how fast the choir sings, the liturgy can go on for way over two hours, and often does. There are folding chairs around the sides of the church, for those so sick that they have to sit down.  Given that there are women who are 90 years old and they do not sit, even when I was pregnant, I never had the nerve to use one of those folding chairs.  Don't even argue with the senior crowd on how "hard" this is because they are the first to point out that we "Americans" can go to cocktail parties and stand the whole time without feeling any hardship.  I guess point taken?

But doing everything the hard way seems to be our creed and I think we perversely enjoy it. That’s not to say that we don’t enjoy ourselves. We come and go all willy-nilly, in and out of the church.  Oh, we don’t turn our back to go out, it would be disrespectful to God to do so, just as it is too disrespectful to sit in His presence (hence, the no pews).  But we sure do a lot of walking out of the Church backwards and go out to have a bit of a first round of "catching up" before the end of the liturgy, whenever THAT might be.  For those of us under the age of 60 or so (because those are the ones born here, so we’re the radicals!) we try to time our getting to church after the Apostles’ Creed, yet before the Lord’s Prayer. Growing up, I always liked to arrive after the Lord’s Prayer since I still had enough time to get sick from the incense, pass out from the heat of so many people in such a small environment, but my mom always preferred risking me passing out or barfing, so before the Lord's Prayer it was.  When my kids were in Russian Orthodox camp, they used to love to keep count of the "fall and barf" tallies and still remember those days of standing in the sun very fondly.  How can you not love such a church? What traditions!

Anyway, it was Easter of 1988 or 1989.  On the whole, we tried to make an effort to go to our local Greek Church as regularly as we could, especially given that I was usually too sick to go to church and poor hubby, who took the kids to church was neither Greek nor Orthodox, puzzling and confusing some congregants, rightfully, to no end. This was all because I had yet to find the RIGHT Russian Orthodox Church that would do - we’re all full of various factions, as to which immigration "wave" we’re from, the kind that has "Outside of Russia" included in its title, etc.  "Our kind" could never accept the pews. Thank God the Greeks, and Ukrainians as well, have gotten over the pew issue for the most part. There’s a Ukrainian Church in town, but it’s a Ukrainian Orthodox Catholic Church. You’d think that would be a great compromise for me, given that my hubby is Catholic, and really, I am ethnically Ukrainian, but for all too many reasons, I feel closer to God in a Greek Orthodox Church.  I know: this is precisely the kind of thinking that has had nations go to war with religion at the center, throughout history, and will continue to, I am sure.  But understanding that hasn’t changed me much!

Anyway, I’d been feeling very far from my roots and that Lenten season I decided I would prove to God how much I loved Him and my church by doing the whole Lent bit.  I so love the relatively new word "vegan." Growing up in the Virginia years of my life, I would always have to explain to my friends why I couldn’t eat anything animal during Lent. This took a lot of explaining and I've never really understood how much Protestants understand the concept of Lent. My one Protestant experience was a Seventh Day Adventist boarding school (long story) and since we didn't eat meat there, that became a non-issue for me come Lent that year.  The Virginians of that early era, however, certainly didn’t understand the concept of no milk, cheese, nor eggs. The no-meat was a bit weird to them, but hey, I was a "Russian" and they all knew that the Russians were a dubious group at best.  In fact, most were often left scratching their heads over how I could be a "Red" or "commie" and someone who went to Church regularly. (And no, for those not used to my occasional sarcasm, I am not, nor have I ever been, a member of the Communist party!)  Enlightened, Hopewell, Viriginia in the early ‘60’s was not, a place that had little patience even with Catholics, so the rest of it was way over their heads. Now all that is covered by the word "vegan" and that, in and of itself, makes you sound so virtuous and admirable almost - even in a society that often simply gives up chocolate for their Lent.

So feeling that particular year that I would do the whole Lent bit, I went "vegan," normal Russian Orthodox operating style.  Understand that my doctors, who were still not sure what was wrong with me, but knew I was definitely sick because by now I’d had two abnormal spinal taps and was in the hospital approximately every two weeks, each time for a two-week stay, had long ago given me strict instructions that I was not to do any Lenten dietary restrictions.  But what do doctors know, right?

That Lenten season, I was feeling so virtuous, and looking kind of good, weight wise.  The kids ate their normal diet with a few restrictions I’d thrown in, the same for them as with how I was raised. But I felt my doctors were wrong about the dietary restrictions because my grandparents, who had died in their early 90’s at a time when people just didn't live as long lives as today, adhered to every one of the four Lents the Russian/Ukrainian Orthodox Church "required."  Besides, my philosophy went, I was made of strong stock: if Lenin/Stalin and then Hitler couldn't kill us, then what harm could going "vegan" possibly do?

I wish I could remember what the heck happened.  Honestly, after so many decades of being sick it’s hard to remember which year was dominated by what, but it had to have been bad because late on Good Friday after church, I was admitted to the hospital from the ER. The next day my doctor came by.  I have to admit that he and his wife were our very good friends so he had a heads up on what was going on in my life, as well as in my head.  I think he probably realized he’d had no meat the last few times he’d had a casual meal at my house and that going to dinner at his house, I’d not had any meat.  Actually, he had given me an informal lecture about it, but I decided to turn a deaf ear.  

So, my neurologist walks in the room, steam practically coming out of his head, and opens with, "do you realize I’ve seen Bowery bums in New York with better blood results than what I just found with you?"  And thus another lecture began.  "I've just spoken to the dietician and they are sending up a hamburger right now, and you are going to eat it." Given that it was about 2:00 in the afternoon on Holy Saturday and that Lent officially ends with midnight, when Russian Orthodox congregants all over the world stop and say (in their various time zones, of course), "Christ has Risen" and we all repeat, "Truly, He has risen," I really wanted to negotiate those final hours. 

"And no! No eating some broccoli with some cheese slapped on it will do," he preempted me, knowing exactly that I would try to get past the meat part.  Until then, other than a few Lents when I was really sick or pregnant, I did manage to be vegetarian. We bickered for a while, him trying to make me understand how truly sick I was, me trying to explain that the damage was done, him trying to explain we were talking about me being close to death here.  Sheesh!  What drama!

Finally he left with the words, "and God help you if you don't eat that hamburger when it arrives here. People are going out of their way to deliver that to you - the least you can do is eat it when it gets here.  You’re not out of the woods yet, but you don’t need to sabotage yourself further."  

Oh yeah, he had me shaking in my shoes: not!  With that he departed, me wanting to say, "Duh, I know this is bad…you have how many IV’s running through me right now???"

Finally, the hamburger arrived. I looked at it dubiously. It didn’t even look very good, adding insult to injury about breaking the fast.  My gosh, I thought, at least I should be "cheating" with some meat that looked and tasted heavenly (pardon the pun) not with a burger from a hospital kitchen.  Deciding that I wouldn’t be able to put it off much longer and that my nurse would soon arrive to see if I had eaten the darn burger, I took one bite in my mouth and started chewing and…

…it tasted awful.  But worse, I looked up and there was my priest!   Bless his heart, but he thought he’d run by my room quickly before the whole Easter process started at 11PM.   At our local hospital the beauty is that it doesn’t matter if you want your local clergyman to stop by or not: they do so anyway, regardless of what you check on your admission form.  At the "major medical center" I hunted for the chapel many times, followed arrows and after seven long stays, can tell you that I never found it.  But in our little town, by golly, you got your clergy whether you wanted to or not – and I love that.  When we asked for a clergy person in that medical center, it was only with the "Palm Sunday" visit that we had anyone come by.  Sorry, but I happen to think that when in a hospital, clergy should be accessible if you want to go that route too, especially with the principle that "there are no atheists in the trenches," and I certainly do like my clergy there, although perhaps not so much in that particular year on that particular Saturday just hours before Easter.

I looked up at the clock and saw that it was 6PM. I was only six hours away from having done Lent "the right way."  So close and yet so far, you might say.  Father didn’t bat an eye and made the motion that I should keep eating, and prayed over me as I choked on that burger. We’ve never spoken about it but I’ve always wondered what went through his head that day.  I’ve never even had the nerve to see what Lenten restrictions the Greeks hold.  None of it mattered, of course.  God knew what was in my heart.

And that’s what hurt, because I KNEW what I had in my heart. I was actually trying to probably make a deal with God and I should have known from my Orthodox upbringing and my Catholic education as well as my one year of living the Seventh Day Adventist life: God doesn’t make deals.

And so today, when hubby asked me the question that made me go into a tailspin again: our new priest, whom I met sometime just after the new year, not too long after my daughter had had her (we pray) final surgery when we asked him to come bless our house, called hubby and asked if he could come by and bring Holy Communion for me.  We’d had a rather long discussion when he was here that January day (the poor man: we didn’t realize that he and his wife had just had their first baby weeks ago) and he learned how badly I felt that I couldn’t make it to church on Sundays.  

But how to explain that you feel so sick that you can’t have someone come up to give you Holy Communion in your own home on that most holy day in the Eastern Orthodox Church?  That’s a hard one – for me.  It’s my baggage, I know.  I have to get over it, I know.  I know that I need to remember that God knows what I believe.  I have to believe that I’m doing the best I can.

But today I sure do wish there was a butler at my door who could have taken the priest’s card and told him I wasn’t in to see visitors that day.  Hubby will have to do it for me, since he’s the one who spoke with my priest in the first place, and I don’t envy him that. Both understand, I know, even as I try to put on a brave front and wish things could be different, feeling guilty because my daughter is now healthy.

And because the big things ARE good.  But it sure hurts to not be able to join in with traditions you so love and believe in.

(Христос воскресe, Christ has risen!  This to those who do celebrate Easter, but most years have to wait the extra week or weeks after the rest of the world has celebrated their's.  Bring on the sugar, meat and dairy products and ENJOY!)