Trying To Look and Act Human Even When Sick.

Bioderma, Clarins, the Omorovicza "mitt," the Sisley face mask, and the Elemis Papaya Enzyme Peel

I'm afraid I'm pretty ill at the moment. In fact, worried hubby stayed home to keep an eye on me in the AM - a rare occurrence - and I kept asking him for cups of tea with honey. Saying that I am not a huge fan of honey qualifies as an understatement: the last time I had tea with honey was when I came down with the bug that led to the CFIDS/ME/fibro - when my mom flew down to my university to "nurse me back to good health" - so my request for tea with honey pretty much scared the bejeebees out of hubby. I certainly hope the tea and honey work better now than it did back in 1975!

At any rate, when flying home, I came up with a few ideas that I think will be successful for me if I ever have to fly again, which I sincerely hope not, given the unsettling experiences I had coming back.  One day I may write about them, but for now I'm too "verklempt," as Mike Myers used to say on SNL.  I'm just glad I'm home, where I should be, recovering from it all.  (Lawdy! How DO I Manage to sound like such a drama queen!)
So, getting back to my thoughts and ideas. 

• A surprising and successful way to find use for something I didn't care for before:

I was just about to pop a mitt-like washcloth into my checked-in baggage, when I experienced a flashback to the skimpy warm washcloths on the plane that are occasionally passed around before meals.  I received said washcloth "mitt" in one of those trial-sized kits (Omorovicza )which, at the time I thought was a total waste of money.   Now, however, that said "mitt" has found its "calling," I'm more than thrilled that I have it.  
I simply wet it, wrung out all the water I could and popped the thing into a ziplock bag and slid it into the top - and thus easily accessible - compartment of my carry-on.  Every time I needed to wash off my face or hands, I turned to a clean area of the mitt.  

And good grief. This is not a germaphobe talking, just a relatively clean person: those planes are absolutely filthy! Even though business was much nicer (read "cleaner") than economy, still....  And since I try to stay away from the bathrooms as much as possible because of the germ factor, this damp washcloth turned out to be an inspired move. I liked that there was no stickiness after I used the "mitt." I find that any kind of wipes leave behind an unpleasant stickiness.  I can actually see myself using this trick even for a trip by car or train.

• The Bioderma worked out so well that next time I'm going to double the amount I take.  

(Did I say "next time"?  Excuse me while I take my temperature.  Yes, I'm quite delirious!)  I just need to put more cotton pads into the skincare and makeup bag I brought on board with me (hypothetically speaking, of course!)  In fact, I was so obsessed with the 3-1-1 rule of liquid contents taken on board that I kept getting completely confused and kept thinking I needed to take as few items on board as possible.  Fibro-fog really had a field-day with me!

• Skincare masks turned out to be a huge "face-saver."  

My skin was actually in better shape getting off the plane than it had been before getting on, thanks to constant hydration and fooling around with different products.  It made the time go by more quickly (well, almost) and kept me busy.  And yes, I'll be doing a review of the masks I've loved so far, as soon as I can get myself together and run a couple more experiments.  But I do love them completely!

So, there you have it: three ideas that really worked. I'm sure more will come up as soon as I can wrap my head around all that's happened, as well as once my fevers stop torturing me!

In the meanwhile, I hope everyone is doing as well as can be, "only better"!   


NOTE: I've corrected some of the content. Sorry about the errors. It appears that I was indeed a tiny bit delirious when I wrote this post: I've come down with croup, of all things. I sound just like a seal when I cough!

The Party's Over - With A Few Pictures...

Petronas Towers in Kuala Lumpur 

Now that the party is over, so to speak, and my adrenaline is completely depleted, I have absolutely no idea how I will be able to make it home. After a party, you're running on "wasn't that fun" fumes for a bit, but really, everything is a mess, the balloons are sagging and much air has gone out of them (metaphorically speaking) and you're suddenly exhausted, the kind of exhaustion that often causes involuntary tears, the CFIDS/ME/fibro kind, because it is so much more than exhaustion and simple sensory over-load, as well as being brain tired/fried/fogged. It's almost indescribably more.


That's how I feel today: it was a good party. I saw my first child get married on Sunday and on Monday I even managed to go with hubby and the newly-weds to the famous Petronas Twin Towers, did a tiny bit of shopping, and waited for the dark so we could see the beautifully colored fountains and breathtakingly stunning lighting of the towers.


But though my feet held up marvelously, they are full of blisters and are signaling me that it's time to go home, as I still have four more days here, days I know I need to gather up the energy to make yet another trip half-way around the world. The rest of my body is screaming for its own bed, but my brain is trying to figure out how we'll - body, brain and spirit - ever get there. Packing needs to be done. Changing flights will again be a challenge. Duty free shopping is, as I feared, impossible (thus, no fun!) and sitting on tarmacs for hours puts me in a mood that says, "it's just all too much."

But as I rest up today with my brain-fried, beaten-up body and try to rest up enough for the journey home, I can take satisfaction in that I accomplished two "superficial" things. I say "superficial" because the biggest joy by far - completely immeasurable - was meeting my son's now wife and her parents and siblings, not to mention the parents' many brothers and sisters. Everyone was so kind and gentle, words I'd use to describe the Malaysians in general. This is an experience I'll never forget and will always cherish. And the couple was kind enough to take us shopping while they had wedding plans of their own that needed taken care of, as well as spending time with us the day after the wedding, the only day they had off until their delayed honeymoon. And it was, truly, wonderful to spend time time with them, to see the interaction between this beautiful, young couple.

Nighttime display of colored fountains, KL has a stunning "City of Lights" look going on!

But my "superficials"? At the Petronas Towers we were almost overwhelmed by all we saw. It's a beautiful mall for the first 5 or so floors but since we were there on a weekday, it didn't have too many people, nor was it empty either. It was absolutely great not just for window shopping, but for taking in the magnificent architecture, and my all-time favorite activity, people-watching.


Somehow my brain didn't go into sensory overload. When it came to finding a restaurant, for example, we left the first one, since the music was entirely too loud for me, and managed to find a quiet restaurant with, thankfully, few customers. The Indian food was delicious and the wait staff was superb, which I have come to appreciate in this beautiful country.


I even made a few purchases: a couple of books about Malaysia's history after WW2 dealing mostly with how Malaysia did not succumb to communism....fascinating and I now regret that hubby put the books into his luggage to spare me the trouble. Yes, he's left on an early flight back to work and my son came by also before flying up to his job. (The party IS indeed over.)

The groom is trying to figure out what he wants to eat at an Indian restaurant.

Then to the fun part, the decadent part of the shopping: I actually bought the Sisley face mask and a travel size assortment of Sisley products. After seeing the Sisley booth in duty free in Singapore out of the corner of my eye as I was whisked from one terminal to another, Sisley has been haunting me! One thing to check off my list!


And, finally, though we have our own mini Sephora, which I've never been to, there was a real one on our way out of the tower and at one point I thought I'd died and gone to heaven! I especially loved the lay-out of the store: so organized and not at all overwhelming but fun.


So, it's been a bit of an action-packed eight days, so different from my usual style! I'm sure bits and pieces of the trip will find their way into my posts for a while, especially as I have access to my pictures and am sent even more pictures from the young couple and as I think about what I saw and learned. But for now, I need a few days of rest as I wait for this body of mine to gather up enough energy for the trip home, back to my bed!

The fruit platter was always full, no matter what you ordered.

Does anyone know what the leaves with the golden cherry tomato look-alike is?

Malaysia and CFIDS Travel (with 3 beauty tips)

Looking outside my balcony.

What people - friends, family, doctors - don't seem to realize is just how ill we with CFIDS/ME/fibro truly are, and with me, at least, it IS my fault to a certain degree. I don't know about others, but part of it is that I just can't seem to be able to allow anyone to see me at my worst. I just have this strange thing about people seeing me when I'm so ill and looking like death warmed over. In a hotel, for example, I won't even allow housekeeping to come in to change the sheets and towels on my bad days and I am a fanatic about sheets and towels - ask any one of my college roommates!

Not surprisingly, the hallmark of this dreaded disease, post-exertional malaise, has hit me hard, really and truly stepping in, full blast, three days after arriving. The ulcers in my mouth were out in full force even on the first planes and by the time we were in flight from Tokyo to Singapore, it was almost impossible to even swallow water. (Hopefully, I'll soon address this CFIDS/ME/fibro problem in a post.) Now my muscles are aching to the point where I don't even know how to describe the pain. My eyes are burning, red and raw just because...because they ARE! My lips are blue turning to white, and just the thought of moving from the bed to the balcony or bathroom makes me want to cry.

You who have CFIDS/ME/fibro know exactly what I mean. It's not crying like a baby or spoiled brat, nor even the tears of anger or anguish. It's involuntary tears flowing because you know that there is much that needs to be done, though you try to tell yourself that constantly thinking about it will only make things worse and desperately try to convince yourself that somehow things WILL get done. The only chance you really have of recovering from "overdoing it," in order to "overdo" it yet again, to function enough to participate in a huge/important function, is to let go of thoughts of things that need to be done and mellow out. Yet this is almost an impossibility because so many of us are Type-A personalities. And so, Fibro-brain, the partner to pain, excruciating fatigue and all the rest, definitely slips in - in my/this case, the day I started this trip - and like a little terrior won't let go.

I'm in bed, but am I resting? Of course not! In the back of my mind there is a never-ending computer going on saying, "if you do this, you won't be able to do that!" every step of my day and night, constantly recalculating. It's not obsessing, I hasten to add. It is a complete necessity if I'm to survive - but it certainly is tiring.

On the bright side, I hope that I have my fall over and done with. You see, ever-observant hubby has always said, "you've fallen in all the great cities of Europe!" as described in the noted post. Now he can say, "you've fallen in almost every continent!", as described in an earlier post.

Yesterday was devoted to shopping for a dress for me as mother-of-the-groom. Given that my Viking blood coexists with my Mongol blood, it was quite the hunt. I'm almost 5'8" and ugh! - I've gained at least 10 pounds since I left home. Somehow I always think food will cure whatever ails me, and I've been, let's say, doing a lot of curing! Thank heavens I brought quite the selection of shoes with me since I doubt that even Asian drag queens would have feet as quite as large as mine.

But back to the fall. Yes, "the fall" with a deepening of the voice as you say it (Ha!): "The Fall." My son and his bride-to-be were trying to meet up via their cell phones in the mall and so I decided to sit down on a bench. Kaboom! I went crashing onto the floor, somehow miscalculating how long the bench was. My son was so shocked that he just kept talking, offering no help, as if he were watching this on TV instead of in person.

So, add yesterday's intense going out experience to my not having rested enough from the whole getting-here-fiasco with cancelled flights, etc., and I'm just dead.

I sit in my hotel room and am sooo mad at this stupid illness. I want to go see places. I'm in Asia, for heaven's sake, a continent I never expected to visit. With Malaysia I'm in a beautiful corner of the world and there are so many sights to see. Particularly I enjoy seeing how hard this country is working to turn itself from a developing country to a country that wants to be counted in the world.

There are such beautiful sights. Last night I was able to take pictures of a bridge I can see from my balcony. It changes colors every few seconds from red to blue, purple, green, aquamarine. Each district, as you drive through, has its own unique lamppost so the driver always knows which district he's in. What a cool touch!

I know that what always happens will happen here too. Even though I've been to Australia three times, I saw almost nothing. Here too, this will happen.

Don't get me wrong. I am so thrilled to be here. And it allows me to breath easier knowing where my son is, although he works four hours from Kuala Lumpur. Still, I'll have some sort of idea, some frame of reference. Better yet, I'll be able to meet some of his students and colleagues at the wedding. I'll now know who is who when he writes to me to tell me of a funny incident or whatever...I'll now be able to put a face to the name.

And to complete the happiness, hubby was able to reschedule his work so that he could fly here for the wedding, and spend a couple of nights here before heading back!!! Consider me jumping for joy in my mind, though I must admit that when I DID see hubby coming out of the security area into the lobby, I found myself jumping for joy. This is just too big an event to not have the father of my child standing beside me.

At any rate, I just have to figure out how I can trick my body into believing it's up for a wedding. But not to disappoint, I am including a bit of beauty tips:

• I put on the Omorovicza illuminating moisturizer (no tint) the other day and liked it well enough, but wasn't IN love, though I'll continue to play around with it. I'm seriously considering getting the Laura Mercier illuminated tinted moisturizer. I hadn't realized that there were now two LM tinted moisturizers, the normal one and now the illuminating one. The regular one, which came out ages ago, just did not suit but I think my skin is in better shape now than it was, say 10 years ago, so I'm rethinking the tinted moisturizers since it IS summer. (Granted, because this DD has made it hard for me to make any decision, I might not make a move on that until NEXT summer!)
• I used my Dr. Jart+ BB cream and loved it. We weren't out in the sun - like an MS patient, my body simply cannot tolerate the heat and sun exposure - but the BB cream went on very nicely and didn't feel heavy, yet evened out my skin tone. And, of course, I'm madly in love with the SPF of 50! The color blended in very nicely.
• I'm in love with my new Clinique Cream Shaper for eyes. I tightline the brown I use, and it's a more subtle look which makes your eyes pop. For an idea on how this can be accomplished, my pinterest board shows a picture of how it's done here .

I hope everyone out there is doing as best as can be, only better! Till next time!

A few beauty flying tips from my KL flight.

I used my Elemis bag by Temperley all the way to and from KL... a very "successful" choice!

I'm finally in Kuala Lumpur! It was an incredibly long journey with more than a few things that went topsy turvy - long delays, canceled flights, and rerouting - sounding entirely too much like fiction by the end of it all. There were huge up's and down's but I'll try to spare you the finer points and hit the highlights only.

I'd flown to Chicago on Friday morning and boarded the next plane in time, thanks to wonderful transport people, aka (in my mind, that is), "the wheelchair squad," who were fantastic on every step of the entire trip. After sitting on the tarmac for four hours (I'd already done my DIY facial out of sheer boredom and since my neighbors started talking, it was a fascinating time - very JOLLY, in fact!), the flight was cancelled. I'll just say that I'm glad that *I* didn't have to do the explaining as there was a sea of unhappy passengers, an understatement. There was much drama, including my trying to help a poor Chinese woman who spoke no English, was traveling with some sort of injury, to a mother who was either sick or dying - our sign language was failing us - and no cell phone. We were glued at the hips for a few hours as I tried to contact her family on my cellphone and I think she wanted to share a hotel room since she kept telling everyone we encountered - in sign language, that is - that we were traveling together and I had to explain what was really going on. Helpful I am, but sharing a hotel room, I thought, would have been too much. (She was given her own room, I'm not a heel!) And can you imagine just how much sign language would have been needed when I whipped out all my meds? I'm not sure any kind of language could ever have explained that! Insomnia woman here - me! - managed to fall asleep for an hour or two when someone tapping on my door at 4AM awakened me and then that was it: no way of falling asleep again.

Things started to go a bit sour Saturday morning, when, as I was about to be directed to my gate, I found out that I was going to be sent to KL via Tokyo and Singapore instead of by way of Beijing. I was now on an even longer flight with an extra stop, coming into KL Monday morning. Bear in mind that I was originally to arrive in KL on Saturday night, so I was beginning to think this whole trip would never even begin, especially after sitting on the tarmac for three hours on Saturday. At one point it even looked like they were going to cancel the flight on Saturday, too, when there was a hiccup with the radar, and I seriously considered turning around and flying home, wondering if the stars were trying to tell me something, like "stay at home, you crazy woman!"

I must say, this post is starting to sound suspiciously close to the "What I Did On My Summer Vacation" assignments in grade school we all had each fall, though I don't remember DIY facials and alcohol being part of the equation! Ah yes, the booze! I hasten to add that there was no alcohol on my part, since like most of us with CFIDS/ME/fibro I, too, can't tolerate any alcohol, but my fellow passengers imbibed. However, there were MANY moments when I so wished I were part of the soused crowd! To add to the madness, I was again refused water a few times. I was told I could have as much liquor as I wanted though, but that water took up entirely too much room! Despite having a note from my doctor saying I needed to drink a LOT of water, I did not bring it out, feeling that would have sounded too petty and having learned in Chicago, the hard way, that the airlines did NOT like to be told what to do by doctors, a LONG story I'll spare you.

No sleep, as my English (as in "British" vs. English language, though he did speak English too ) fellow passenger and I spent the twelve-hour flight talking. By the time we arrived in Tokyo those from our flight were so late for the connecting flight to Singapore that everyone on this leg of the journey seemed to be angry and grumpy about too many problems and I saw no one talking to anyone. My swollen feet found relief in the wonderful 180 degree sleeping pod - what bliss!

Finally, after a huge lay-over in Singapore, I luckily discovered that the business lounge had shower facilities and they were wonderful. It absolutely KILLED me that I wasn't able to hit the duty-free shops we passed in the motor car - EVERYTHING was there and in massive amounts and I understand it is THE best shopping airport in the world! But back to the business lounge: beautifully but simply decorated, equipped with first-class products (I remember L'Occitane) I was able to wash my hair, change clothes and put on fresh makeup for the last leg of the journey, less than an hour flight.

What I took away from this part of my trip thus far:

1. Keep the TSA and airlines happy, but don't cheat yourself. I almost disregarded the cardinal rule of having a change of clothing with me. Since I wasn't allowed access to my checked-in luggage once my flight was cancelled, it was a good thing that I'd thrown my change of clothing back into my carry-on bag again at the last moment after trying to taper down how much I carried in order to make the TSA happy, not to mention the airlines. I don't think I'll ever forget deodorant on my carry-on again and since I was afraid of the hassle I might have in carrying a syringe with me, all were packed away when I needed to give myself a shot that night in the hotel, a most unfortunate move.

2. Bring along products whose smell you know and like. This actually goes for all products you'll use on the plane. I was ready to gag from the smell of the facial wipes used on this trip. The facial spray was an unfortunate selection, too, since I had men sitting next to me on each leg of the journey and if *I* thought the smell too floral and old-lady-ish, I can't begin to imagine what *they* thought. In the end I used the wipes and spray as infrequently as possible, which sort of defeated the whole purpose of bringing those products in the first place. I'm going back to my water-in-a-can Evian or Avene on my return flight.

3. Be sure to use tried and true beauty products! I'll always pack my Dove and LaMer in my carry-on from now on, which was a good, though unfortunate, lesson for me. I left the Dove in my checked luggage and since my skin hates any other soap, between the starch and hard water washed linens of the airport hotel and unfamiliar soap, my entire body was abraded, red and sore. I threw in a tiny sample of LaMer cream at the last second and should have stuck by it. The valuable space the other serums occupied was huge and they did not hydrate - thank heavens I finally thought to try my LaMer. Healing began as soon as I remembered it. Bioderma, too, did not disappoint and was a lifesaver.

Finally, a note: I've found a way of posting from my iPad...I hope it works. It's a bit frightening hitting the "publish" button and so, a warning: any craziness in typo's, dropped words, convoluted sentences and grammar (more than the usual, that is) can't be fixed from my end, I'm pretty sure, so apologies in advance. I can see/feel my OCD starting in already! :) Eek!