About Me

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I'm a mom, a wife, a best friend. Sick with CFIDS/ME/CFS and Fibromyalgia since 1975 as a result of a nasty flu while still in grad school, it wasn't until the late '80's that I received a diagnosis. Until that flu I'd never really been ill before. With each year I get progressively worse and add to the bucket load of symptoms I'm living with. I've been blessed with an incredible family and best friend who've stayed with me through my struggles as we continue to find a way out of this monstrous illness and its complications. We've tried seemingly every approach to find my way back to health. Often I think our best weapon in this undesirable and unasked-for adventure has been laughter.

Sunday, February 17, 2013

"Woeful Me" ;)

Woeful daughter, "But DAAAAD!"
Today's post is not an easy one to do because for the last couple of weeks I've been feeling under the weather a bit more than usual.  Several times I told hubs that I wouldn't be able to write a post tonight but in the end my guilt got the best of me!  My life has also gotten a bit busier than is good for me - quite the opposite of what I should be doing at this stage, which is getting a lot of rest.  However, life happens and there's not much you can do, no matter how much you try.  Right?  Right!  So onward! 

  • The week before last, I did end up going to see my endocrinologist since I felt it would be too rude to turn down an appointment that was carved out for me after the cancellation.  It was a very good, though intensive, visit.  First, it took me my usual 3 hours to get ready; secondly, my sleep was so messed up that I was up at 3AM for a 3PM visit.  The drive (by hubs, not me!) to see him is a bit long and the visit took over an hour.  Normally I see him at least once a year to make sure that my Human Growth Hormone (HGH) levels are where they should be and that the dosage is correct.  This time we had so very much more to go over, including the after-effects of my gall bladder surgery (hormones involved in this aspect of my health as well) and my adjustment (or "non-adjustment") to the hypothyroidism.  Much was accomplished and many more blood tests ordered.  In other words, he doesn't like where I stand some 4 months after the diagnosis of the thyroid problem.
  • Then, as luck would have it, two days later we had a meeting about the progress of the redecorating, remodeling, etc., and how it was coming along.  Let's just say that it was off-the-chart stress.  Fini.
  • On top of all that, even hubs started getting worried about the disappearance of my jewelry and we've been hunting it down every chance we have.  I thought the post on the "blue men" would dissipate any nerves regarding this issue.  That is, I thought I'd be able to put things into perspective about it all and let the jewelry appear when it would, but no such luck.  The more we hunted, the more I "yelled" at hubby and the more nerves were frayed. (Ahem.) This morning, after almost two weeks of jollies on the part of the blue men the jewelry reappeared in our house.  Hubs, the stalwart one, was almost in tears because I had been so upset.  (As Marlo Thomas, Rosie Grier and the kids would sing, "it's alright to cry!"
  • Which brings me to the last bit.  I've been feeling so ill from all these events (and MORE!).  My health simply keeps getting worse and worse.  I find myself falling asleep at the oddest times for many hours, then not being able to fall asleep when I've had pain out the wazoo.  And it's been the craziest things, too, which have been bothering me!  For example, last night I suddenly developed bursitis in a cheek (not one of those on my face!) and it took three well-aimed shots to get that under control so that I could move.  Suddenly, I had not only one leg I couldn't count on - the one with the neuropathy - but a second one which was collapsing on me, the one with bursitis.

Would it be too trite to say that in the last couple of weeks it feels like the old song, "if it weren't for bad luck, I'd have no luck at all..."?   

One good thing, however: despite how I felt, I only cried once.  It could have been a river but at least I was able to control that part of my life.

As always, hoping that everyone's feeling their best, only better.  Remember: don't be like me: it really IS alright to cry!  Ciao and paka! 


  1. Ow Dear Irene so sorry you have been so poorly really feel for you. Yes it is alright to cry and you should will join you. Stress is not good for boys either makes their ME so much worse. No one understands unless they see their loved ones suffer. Sending you loads of love and hugs Soph xxx A couple of new pic of FB of us take a peek :0)

    1. Hi Sophie! Saw the pictures and they are so cute indeed. Thanks so much for the words of encouragement! xx