|One bad day in the mid-80's: hubby's idea of lightening the mood, a gorilla-gram! I love that I have a bracelet on even when sick.|
If I had any idea whatsoever as to what the profile questions were about, I'd answer them, no problem! I really don't mean to sound mysterious. I'm a wife, a mom and, I hope, a good friend. My "long-suffering" hubby and I have known each other for 37 years, meeting on, of all things, a blind date and falling in love at, just about, first sight. My first reaction upon seeing the tall guy in front of me? "S*^t! THIS is what I've been waiting for all my life?" and proceeding to answer no more than "yes" and "no" for the entire evening. We've been married for 36 years and have three fantastic kids, who love their mom and dad's story of how they met and tell everyone about it. My best friend of all time and I have been BFF's for an unbelievable 41 years. For a long time I had no idea what the heck was "wrong" with me. We kept making excuses for my seemingly sudden fatigue and brain fog and a host of other problems that were added to my "what's wrong with me?" list as the years went by. Eventually, about fifteen years later, I was diagnosed with Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) from a severe flu I got in grad school in 1975, commonly known as Chronic Fatigue Syndrome (CFS), a term my fellow sufferers and I detest. If anything, I prefer the British name for it, Myalgic Encephalopathy (ME). The British ME shows that in England, at least, as well as Australia, they take this illness more seriously than we Americans do. Over the years as I've become more and more sick I've worked hard on trying new tricks and ways of surviving this illness. I've been extremely lucky in that my hubby and kids have been so supportive of me over the years - and fierce in their own fights to help make my life a bit easier to survive. But most of all, the thing that has helped our family stay together and fight this beast is our gift of laughter. And it truly IS a gift. We've had our "challenging" periods and were it not for laughter I just know we would not have survived this DD ("dreaded disease, "darn disease," etc., you get the drift). I have no idea if anyone is actually reading this blog. It often feels a bit like when I catch myself talking to myself - a genetic thing, I tell myself, because I do remember my grandmother doing so! But I certainly hope I develop a bit of a following because over these past 37 years I've been able to come up with various coping techniques and tips that may help those with CFIDS, Fibromyalgia, insomnia, and, indeed, anyone who suffers from chronic illness, be they totally bedridden, as basically I am now, or still struggling to hold down a job, or at least some semblance of a social life. So glad if you've been able to drop in and spend a bit of your time with me. Please leave comments if you're at all inclined to do so and/or subscribe. I will answer any questions you may pose and will enjoy hearing from just about anyone...it'll be nice if and when I'm no longer talking to myself.