About Me

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I'm a mom, a wife, a best friend. Sick with CFIDS/ME/CFS and Fibromyalgia since 1975 as a result of a nasty flu while still in grad school, it wasn't until the late '80's that I received a diagnosis. Until that flu I'd never really been ill before. With each year I get progressively worse and add to the bucket load of symptoms I'm living with. I've been blessed with an incredible family and best friend who've stayed with me through my struggles as we continue to find a way out of this monstrous illness and its complications. We've tried seemingly every approach to find my way back to health. Often I think our best weapon in this undesirable and unasked-for adventure has been laughter.

Friday, August 24, 2012

Friday Tidbits

property and copyright by Andrew Romano
Breaking news: the winner of the Followers Giveaway - which is to celebrate the six-month anniversary of my blog! - is "M," aka Maggie.  Maggie: congrats and please let me know if my message doesn't get through to you regarding where to mail the kit to.

And a huge thanks to all for putting up with my reminders!

I'm glad I found another picture for the top of the post: what in the world was I thinking when I put up that ugly hydrating mask monstrosity yesterday???   It will haunt me forever now!

Last night my daughter came by to tell me all about the first day back to school with the kids and I can't tell you how much we all laughed.  Trust me when I say that I've never laughed so much in my life and we are a laughing family so that's saying an awful lot!  There were parts of my body moving around that I had no idea existed.  We watched things on YouTube that had us clinching our stomachs and then got rather naughty and  had fast food - I think I was celebrating the hypothyroidism in some sort of strange way.  Again: fibro-logic.  We debated how we would pull the names out of the hat.  

In the end, I think subtext was all: it was all about just being in a fantastic moment for all of us and we were happy to use any excuse to celebrate life and not worry about anything for a little while as we later tried to watch TV, and kept rewinding because no one could go for more than 30 seconds without coming up with something that would start the laughter again.  I think it'll be one of those moments that you remember forever: it was just that good.

And those are the sort of things one lives for, no matter what your health, no matter what your problems.

Now I'm crawling back into bed - it was a bad night, after all the merriment and junk food, hence the delay.  But all so worth it!

Happy Weekend everyone.  I hope everyone's feeling their best, only better.  Ciao and paka!


(Just for legal purposes, I'm adding that this photo is copyrighted.  Please do not reprint!)


  1. Irene,

    Thank you, thank you, thank you....this has been a record week for awfulness, and this is so unexpectedly wonderful! My email is mbenedette at gmail.

    Thank you, thank you, thank you!!!

    1. Maggie, so delighted I could make your day...you won fair and square. Check your email for my message! You're quite welcome, and thank YOU for participating. I hope you have a wonderful weekend. xx

  2. Hi,
    I've been searching blogs written by people with fibromyalgia to get other's perspective, ideas, self remedies, experiences, ect. I live with the beast myself and just started my own blog,"Life's a trip", lam60.blogspot.com. I appreciate the blogs that offer helpful hints and I'll sure post what has helped and not helped me from time to time but I really just wanted a place to vent and/or talk to a community that understands. All of our spouses try. Some are supportive and some are not. Thank Jesus mine is but I'm sure he really has no clue either. So if you don't mind, I will be following your blog and most likely commenting from time to time. btw, what is ME and CFIDS? Have a special day!

    1. Welcome to the blogging world, Lori! Congrats: you taken your first steps! CFIDS and ME are what is commonly referred to as CFS, "Chronic Fatigue Syndrome," a term most of us dislike and I personally despise and only use for purposes of blogging, never ever in the "real" world. CFIDS stands for "Chronic Fatigue Immune Dysfunction Syndrome," a title that the more enlightened are using as it more closely describes the illness, though not going into the neurological aspects of it, alas. ME is the British term, and used also by other parts of the Commonwealth or former Commonwealth, very close to CFIDS, though there are a few differences if you want to nit-pic, as some do, and stands for myalgic encephalomelitis, a term I much prefer, though it too, is not very accurate and disliked by many. CFIDS and fibromyalgia often overlap, though fibro comes from many conditions and one can have fibro without having CFIDS, though it often occurs with other disorders and illnesses. That's it in a nutshell, a very, very over-simplified one, however. I intend to write a good definition and go over the highlights when I become a bit better at the techno aspects of the blog! xx