OK, I know that I can be strange at times, indeed very strange. That's what this dreaded CFIDS/ME/fibromyalgia life experience has done to me. But I'm here to pass on a bit of that strangeness, which actually are survival methods, to the current generation, sort of handing off the baton, so to speak. Make of it what you will.
I got to the point where I was starting to go out almost NEVER. Going to the ob/gyn was about as exciting as life got fired up around this period. The coping mechanism/mind game I came up with, especially as I had a beautiful closet full of incredible clothes, was a bit unusual.
On the days I felt well enough, I'd hang out an outfit on the outside of the closet door at the foot of my bed so that I felt that in some way I was still indeed a part of the world and could actually "enjoy" wearing my clothes the easy way: clothes had become difficult to wear because my skin and nerves were just that sensitive.
It sounds crazy but I didn't even realize what I'd been doing and it helped me survive one of the worst period of my 38 years with this nightmare. I most certainly hope that I'm not the only person in the world for whom this sort of "therapy" worked?!? (And do I get extra points for unique thinking?)
I find that at times the smallest, unnoticeable and innocent act can throw one over and mess up carefully-conceived plans. I had moved my son's old room armoire katty-korner to the wall and that tiny detail gave the room a completely different look and feel. However, not too long after, a young lady was helping me with decluttering the room, as well as other rooms, and in her enthusiasm, she took it upon herself to turn that armoire back against the wall to it's "original" (read "boring") spot when I was busy elsewhere.
I'd been making great strides with that room. However, because it took so much energy and psych'ing myself up for this project, it took just the smallest "negativity" to make me feel as if I were a balloon that had been popped and the air was escaping too quickly, just like my hard-earned resolve.
From now on, I must try to impress upon my family how important attitude is. They are supportive, yes. However, although they understand, somehow they do NOT understand how difficult it is for someone like me to do anything at all. Though they understand how ill I am, they are somehow unaware that a look with a puss on it's face or innocent words such as "Ugh! I'm just so tired" can undo any "health credits" I had so carefully worked on building up in order to do a small project. And no, two years later, that armoire is still in the "wrong spot" and the room is still a mess. I may put this room on my to-do list this weekend if we can manage to stay healthy!
- The Lists!:
Time gets away and before you know it "C" is coming up - soon (cringe!). Well, while channel surfing a few days ago I saw a couple trying to sell their house. The important thing is that after a not-so-fantastic house appraisal the news station gave the couple a to-do list to be completed within 48 hours. I saw that list and drooled!
That's it! I'm going to start writing a list of things that MUST get done during the weekend, but very easily obtainable goals and not put down "peace in the Middle East" as a weekend goal. However, taking in the potted tropical plants into the house for the winter and decluttering 15 items of the obviously no-longer-worn to donate is, I believe attainable, and will be on the list.
And so you have my Friday Tidbits! I do hope this list will be a good inspiration to some, or at least a great chuckle!
Here's to everyone having a fantastic (and productive) weekend. I most certainly hope that everyone's feeling their very best, only better. Ciao and paka!
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Note: above image from Polyvore.com and pinterest.com.