About Me

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I'm a mom, a wife, a best friend. Sick with CFIDS/ME/CFS and Fibromyalgia since 1975 as a result of a nasty flu while still in grad school, it wasn't until the late '80's that I received a diagnosis. Until that flu I'd never really been ill before. With each year I get progressively worse and add to the bucket load of symptoms I'm living with. I've been blessed with an incredible family and best friend who've stayed with me through my struggles as we continue to find a way out of this monstrous illness and its complications. We've tried seemingly every approach to find my way back to health. Often I think our best weapon in this undesirable and unasked-for adventure has been laughter.

Monday, September 23, 2013


I managed to go outside for a few minutes the other day and these are the roses that were still hanging in there.

Hi y'all.  Yes, I'm baaaack - well, sort of.  As many of you have suspected, I've had problems galore, health issues, in some ways just about every sort of issue you can imagine.  I can honestly say that this is the second worst "period" of my life.  Understand, I'm so old that I was in high school when man landed on the moon.... a very LONG time ago indeed!  This is such an awful period that there is no choosing "was this the worse or was that the worse?"  No. This is the 2nd worst thing by a country mile. Period.

Now here's something to fear in a haha way.  I have had some wild "adventures" while I was gone: like ER insanity and so forth.  In fact, so much has has happened to me in the past five weeks that I feel as if I have enough material to write posts for at least a month.  Well, a month-full if I didn't forget so much and could muster up the energy. ;)

I also know that I need to get back on that horse of mine (metaphorically speaking, of course - I don't actually own a horse) and just start writing.  In the part of my brain that isn't full of fear and despair I know that life goes on or it doesn't, all dependent on fate or on a Higher Power.

(Pretend there's a transition here, please!)  

I must thank my readers here for all the support I've received.  I've only ventured to twitter a few times (missing everyone!) and have been  brought to tears for all the support and kindness I've received from quite a few of my twitter family.  Thanks so much.  Your words of encouragement, support, just letting me know you're out there PLUS the many prayers I've received have been more helpful than anyone would believe.  I hope no one ever has to go through such grief.  I still need many miracles but I don't see it happening.

So, thank you blog world, ipad, computers, email and the other social media out there.

If we had to have the DD: CFIDS/CFS/ME and/or fibromyalgia, we've gotten this monster at a pretty good time. We have:

  • medications that help somewhat
  • no matter what the time or day, there's always someone on the other side of your state, country, continent, who is there.  We can cry, we can act silly.  But we also have those who understand this the hard way.
  • We have friends who've come back into our lives after decades and they have been so supportive. (I have GOT to think of another word for "supportive"!)

I want to and am so tempted to write a list of names to thank those who've been here on this blog (and had the energy/courage to makes comments here), on Facebook and on twitter but there are so many and I'm so afraid that I'll leave someone out.  But please know that you are in me and you are helping to alleviate what I'm going through a bit.  It all adds up in the end and you hope and pray that it's enough.  I'm way behind in my connecting with those who were and are there for me and ask you to bear with me.  

Finally, I'm taking one day at a time.  I'm still falling.  In fact, I just fell off my chair about 5 minutes ago, misjudging where the chair was.  Good thing I love my bathroom floor - generally speaking.  We've got the beginnings of a beautiful friendship.  In human terms I'd say that bathroom floor and I are going steady and who knows where that could lead!

At any rate, I'm still living with a migraine (both head and body migraines) that won't leave me, the orthostatic intolerance is almost unbearable, the eyes are doing weird things to me, the myoclonus is almost out of control.  Oh good grief.  We can be here all night if I start listing just some of my "minor problems," so I'm calling it a "day." 

Fear not: there are a few laughs coming up in future posts.  Just working hard to make that lemonade, folks.

As always, I hope everyone's doing their very best - only better!  Ciao and paka.

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  1. Lovely humorous post Irene despite the many trials you are facing. Hope things pick up soon.

    1. Thank you, Mandy. What a lovely thanks and comment. xx

  2. I'm so sorry to hear about all that you're going through.

    1. Thank you, Berry. Sorry it took so long to answer. But rest assured that your comment helped. xx