tag:blogger.com,1999:blog-7385285973919124831.post4263705553748220793..comments2024-03-12T01:33:14.862-04:00Comments on Laughing from my sickbed...: Explanations & Understatementsirene speakshttp://www.blogger.com/profile/15306297235592610766noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-7385285973919124831.post-15875380468414239752013-11-20T16:40:39.562-05:002013-11-20T16:40:39.562-05:00They did three of those. Evidently there's on...They did three of those. Evidently there's one doc in town who swears by them & the nurses said they do magic. My very European mom would have approved! She's been a "natural" nut all her life. Frankly, I was surprised she'd never exposed those to me when I was growing up! ;) xxirene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-74797101755862777052013-11-20T16:24:56.331-05:002013-11-20T16:24:56.331-05:00Milk & Molasses enema is that what they tried?...Milk & Molasses enema is that what they tried? I have had those as well. I never knew there was such a thing until I ended up in the hospital getting one-LOL!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-68550696708004125502013-11-20T12:59:15.715-05:002013-11-20T12:59:15.715-05:00Oh, Alpa, I really need to pray that you get a doc...Oh, Alpa, I really need to pray that you get a doctor who believes in ME and who knows what to do. Honestly, I can take just about anything until I came into contact with someone who thinks it's all in my head, despite real medical bio markers like the elevated protein in my spinal fluid and so many other real indicators. I just can't handle the nay-sayers. How to get you to someone who can really help? I wish I understood the British health system better so I could give you some real advise on how to get to someone who can actually help you. I hope this blog at least gives you a feeling of sanity, that you are not alone! xxirene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-38787480309800927442013-11-20T12:51:28.463-05:002013-11-20T12:51:28.463-05:00Thanks for writing in. Yes, it is definitely the t...Thanks for writing in. Yes, it is definitely the toxins that get to you, until there is no room for anything. It was bad though when I had 1 doc with 40 yrs of experience and another with over 30 yrs say they'd never seen it this bad before. Heck. I've had this mess for around 38 yrs and this was like nothing I'd had before. Molasses is a smell I never want to be near again. But it did help, finally. Hate to say that it's great to know others out there know what it all feels like, but it IS reassuring. xxxirene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-54462455349923257212013-11-20T12:44:55.539-05:002013-11-20T12:44:55.539-05:00LOL! Now why am I not surprised that last bit cam...LOL! Now why am I not surprised that last bit came from you, Sian? Good advise! xxirene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-1706461246106075332013-11-19T20:52:40.042-05:002013-11-19T20:52:40.042-05:00Irene, you poor thing! There is no polite way to w...Irene, you poor thing! There is no polite way to write just what I think of the way you were treated. Feel free to imagine it though! It's definitely a no win situation when you have to rest and at the same time have tests done. I'm so glad that your doctor in hospital at least, was on your side. I find that trying to manage my life is being done at the expense of my health. It's just impossible to do both! Maybe one day I'll find a doctor who has a brain and isn't in denial about ME. Thank you for posting and letting us know how you are. It's high time that doctors and hospitals wake up to themselves, without patients having to fight all the time. Take care, Alpa xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-33176479277823898622013-11-19T17:17:42.150-05:002013-11-19T17:17:42.150-05:00I have been in your exact position. I have been ho...I have been in your exact position. I have been hospitalized twice for severe constipation. Nothing helps.. laxatives, enemas, milk of magnesia, fluids, or mag citrate. It is very discouraging & painful. By some shear luck things for me eventually "pass" & when they do I quickly feel better. You basically get toxic from being so backed up.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-60688285502951274032013-11-19T14:43:10.503-05:002013-11-19T14:43:10.503-05:00I'm glad that you can start to consume more an...I'm glad that you can start to consume more and that you are getting good caring treatment. Sigmoids are bad enough. It's the gas that they use that is the worst. I know you've got a lot of appointments etc now but hopefully it's to keep you in good hands and excuse the pun but to get to the bottom of what's going on. It took 10 years for them to finally find out I had ulceration and a hernia by which time I had M.E. <br />Lie back and think of dr hunk. XxAnonymoushttps://www.blogger.com/profile/06967049603027305027noreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-9610914976003409672013-11-19T14:06:23.074-05:002013-11-19T14:06:23.074-05:00I'm a bit upset at the moment. I had to cancel...I'm a bit upset at the moment. I had to cancel today's appt with my GI. I'm just in too much pain, shaking, trembling. My arm is a mess as well. When I arrived at the ER on Sat nite to get an X-ray to see what was wrong with my arm, a BP record was broken: I was up to 190/101, quite a departure from the 90/65-70 we try to keep from getting lower. I think my body is just giving out. Too much going wrong too often & it's such crazy stuff. All my docs are yelling "rest, rest, rest." But how does that get done when you need to go to doctors' offices and have testing done as out-patient? It's a no-win situation. <br />But don't get me wrong. My personal physicians in the hospital really went to bat for me.<br />Thanks so much, Alpa, for your concern and sympathy. I just don't want this stuff to happen to anyone else. People have to know and remember that the doctors and hospitals exist FOR the patients. xxirene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-7734659333968914322013-11-19T13:53:30.802-05:002013-11-19T13:53:30.802-05:00Yes, had the sigmoidoscopy. There was just no way ...Yes, had the sigmoidoscopy. There was just no way they could do the colonoscopy b/c nothing could get in, b/c of the blockage. The barium I drank for contrast didn't show anything in the CT scan for abdomen b/c the barium couldn't get thru. We finally had to rely on daily X-rays to see what was what & to trace progress. Ugh! <br />So very sorry you had to get your problems at such an early age, Sian. And I finally got clear liquids around day 8 in the hospital and then progressing each day. xxirene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-76005229486911401382013-11-19T13:13:26.533-05:002013-11-19T13:13:26.533-05:00Dear Irene, I really feel for you. Outrage at how ...Dear Irene, I really feel for you. Outrage at how it took four visits to the ER and having connections, just so you could get to see a proper doctor. Scandalous is an understatement! I'm sorry you are going through so much. I do so hope your doctor will be able to make sense of it all. Have been thinking of you and hope you are being looked after properly now.<br />Take care, Alpa xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-67369599446818507802013-11-19T11:58:42.139-05:002013-11-19T11:58:42.139-05:00Bowels are never nice too talk about. I avoided go...Bowels are never nice too talk about. I avoided going to school for 3 years because I had bowel problems and I had panic attacks thinking of how much of an embarassment things could be. Did you have a sigmoidoscopy? I'm glad they were sensible enough to not go ahead woth the colonoscopy, it's a big deal. I ended up hospitalised after one as it had bruised me. <br />Hope you're getting lots of rest now. Are you able to eat and drink? <br />Love as always<br />Sian xxAnonymoushttps://www.blogger.com/profile/06967049603027305027noreply@blogger.com