tag:blogger.com,1999:blog-7385285973919124831.post3118539940873208741..comments2024-03-12T01:33:14.862-04:00Comments on Laughing from my sickbed...: Checking In & Updatesirene speakshttp://www.blogger.com/profile/15306297235592610766noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7385285973919124831.post-89967764763339089492013-12-01T23:16:17.110-05:002013-12-01T23:16:17.110-05:00Yes, you read me correctly, Greg. I am getting wo...Yes, you read me correctly, Greg. I am getting worse each year and now it's getting to each month. It truly is almost all to do with treating - as well as coping with - the symptoms as best as can be. Reactivation of the flu that caused my ME/CFS is more frequent now, be it from having been ill for so many years or age or a combination. <br />However, I must point out that though I've yet to find any "solution" and that though I don't think there's going to be any cure for me in my future, I do appreciate a diagnosis, a title, though it IS an insulting one! I looked for an explanation for too many years before I finally got a diagnosis. I do believe that because I had no diagnosis for so long, and because no one understood what was happening, I did get sicker than I might have had I gotten, at the very least, rest. Don't even get me started on the damage that exercise caused. Ugh! <br />I'd like to hear more about the osteoporosis! Thanks for writing in! xxirene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-44438455666560145512013-12-01T23:04:43.547-05:002013-12-01T23:04:43.547-05:00Wow on the bronchitis end, Alpa. Mine always start...Wow on the bronchitis end, Alpa. Mine always started with bronchitis (if I'm not mistaken) and turned into pneumonia. As to the flu vaccine: the couple of times I got it, I became really sick. I think my immune system just couldn't take the stress? (Again, I want to say "if I'm not mistaken'). There is literature that says our immune systems don't "remember" the flu - this I believe! How's the hunt for the right antibiotic going? Hope you get real relief soon. xxirene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-20677846304824050432013-12-01T07:47:22.066-05:002013-12-01T07:47:22.066-05:00This ME/CFIS diagnosis really is a nonsensical one...This ME/CFIS diagnosis really is a nonsensical one as it really addresses nothing nor provides any treatment path for the future. So really, the core of the issue as I see it is that, because medics have no concrete evidence as to what is wrong, that use that label as a means of getting patients out of the surgery/office aand we are really left to fend for ourselves. I was told that I would need every ounce of determination to cope with it, and, by heck, he was right. <br />Like you, as far as I can see from the above (always wary of mis-understanding something that people write) I gradually get worse. It's almost imperceptible on a day-by-day basis but over longer periods it is clearer that less and less is achievable.<br />Being a realist, I have accepted that no doc is going to change my suituation re ME in the near future so I just try to get on with it.<br />Ironically, another medical issue that showed up during initial tests - osteoporsis - and which never affected me in any way is improving!Anonymoushttps://www.blogger.com/profile/05247842056645318842noreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-54399518575441267552013-11-30T19:24:43.507-05:002013-11-30T19:24:43.507-05:00Thanks Irene. Me too! I usually get bronchitis and...Thanks Irene. Me too! I usually get bronchitis and not pneumonia. I'm reluctant to have the flu vaccine again this year as it makes me feel so sick. Will look into the pneumonia vaccine, thanks! I think I forgot there are no limits to how sick you can feel. You did make me laugh though, as I was thinking it would be good to take a bath, wash my hair and make myself presentable before I go to A&E. There were three people in their pyjamas last week when I showed up! I've also been told I need to loosen up. What to do...lol. Hope you feel a little better soon. Take care, Alpa xxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-49877802751202003272013-11-30T16:25:52.613-05:002013-11-30T16:25:52.613-05:00Oh Alpa, no! I hope they find the right antibioti...Oh Alpa, no! I hope they find the right antibiotic for you soon!<br /><br />I don't usually get vaccines but after a couple of episodes of pneumonia where it was hard to find the antibiotic which would wipe it out, I did finally get the pneumonia vaccine. <br />However, I didn't realize that it does need to be repeated in a few years and got pneumonia again last year. So, perhaps it might be worth looking into the vaccine? I can't tell you how much safer I feel knowing I got it and it seems to be a big help for me.<br />Thank you for the welcome back. I hope you feel better really soon! xxirene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-7385285973919124831.post-83664552299299439372013-11-30T15:50:55.409-05:002013-11-30T15:50:55.409-05:00Hi Irene, Welcome back! Feels like you've been...Hi Irene, Welcome back! Feels like you've been gone for ages. So sorry that you've been in hospital again. I found myself at A&E a week ago, only to find out that I've had pneumonia for almost a month before that. Feeling much worse and the antibiotics haven't helped, so I have to go back. I was hoping to do that today but it was impossible! Will try over the next few days. Let's see if they do an x-ray this time. Like you, I can not wait to see the backside of this year. Look forward to your future posts. Take care, Alpa xxAnonymousnoreply@blogger.com